Information Centre for Rare Diseases
and Orphan Drugs - Bulgaria

European Union Committee of Experts on Rare Diseases (EUCERD) has published set of ten guiding principles for specialised social services integrating people living with rare ->>>

EU Council Recommendation on rare diseases urged the member states to implement national and EU collaborative actions to improve the health care of rare disease ->>>

Following the concerns raised by the report introducing the Parliamentary discussion on the General Data Protection Regulation, international rare diseases researchers have started a petition ->>>

DG Health & Consumers is launching a public consultation targeted to stakeholders on the European Reference Networks (ERN). The consultation gives the opportunities to provide ->>>

The European Union Committee of Experts of Rare Diseases (EUCERD) adopted a recommendation in the area of facilitating the exchange of scientific information on orphan ->>>