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    2nd conference on European Reference Networks

    Wednesday 20 May 2015 | 67 views
    2ConfExRefNet

    DG Health and Food Safety is organising the “2nd conference on European Reference Networks” on 8-9 October 2015 in Lisbon, Portugal. This conference will bring ->>>

    Enroll in the 3rd International Summer School on Rare Disease and Orphan Drug Registries

    Thursday 7 May 2015 | 151 views
    summer-school

    Health professionals, researchers, medical specialists, medical students and representatives of patient associations, who are involved or intend to establish a rare disease patient registry are ->>>

    17 April – World hemophilia day

    Friday 17 April 2015 | 218 views
    hemophilia

    Hemophilia is a genetic condition associated with more difficult clotting of blood, which leads to unexpected blood losses when injured. Especially dangerous are the internal ->>>

    Online resources for mesothelioma patients

    Tuesday 17 March 2015 | 306 views
    mesoth

    Mesothelioma Help Now is a website providing information, support and resources for patients and their caregivers. It is educating patients and families about mesothelioma, a ->>>

    100 000 Genomes Project in England aims to create treatment for rare disease patients

    Wednesday 11 February 2015 | 478 views
    genome

    A new company owned by the Department of Health England will sequence 100,000 whole genomes from English healthcare system patients by 2017. 100 000 Genomes ->>>


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