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    Best Practices for genomic biomarkers

    Thursday 14 August 2014 | 102 views

    The European Medicines Agency (EMA) has released a draft concept paper  outlining the key elements that will be developed in a guideline on good genomics biomarker practices. With this guidance ->>>

    New orphan drug for Duchenne muscular dystrophy

    Monday 11 August 2014 | 143 views
    Системен буфер-1

    European Medicines Agency (EMA) grant conditional authorization of new orphan medicine intended for the treatment of Duchenne muscular dystrophy. Translarna (ataluren), will be available in ->>>

    2014 Report on the State of the Art of Rare Diseases Activities in Europe

    Monday 21 July 2014 | 181 views
    Системен буфер-1

    European Union Committee of Experts on Rare Diseases (EUCERD) has annonced the publication of the “2014 Report on the State of the Art of Rare ->>>

    Leaflet on European Reference Networks

    Thursday 26 June 2014 | 262 views

    The European Commission published an information booklet on European reference networks for rare diseases. The publication contains detailed information on the organization and functioning of ->>>

    9th International Conference for Rare Diseases

    Monday 2 June 2014 | 321 views

     The 9th ICORD conference “Societal value of Prevention, Diagnosis and Treatments of Rare Diseases” will be held on 7-8 October 2014 in Ede, The Netherlands. The event ->>>

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