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    “Rare Diseases & Orphan Drugs” – issue 16

    Friday 14 June 2013 | 964 views
    nl_16_bg

    June edition of “Rare Diseases & Orphan Drugs” is now published on our website. It is introducing “Cystic Fibrosis – Let’s Add Life” – a ->>>

    Patients’ Rights for Cross-Border Care

    Tuesday 21 May 2013 | 631 views
    eurordis

    The European Organisation of Patients with Rare Diseases EURORDIS has prepared a FAQ document on the EU Directive on Patients’ Rights for Cross-Border Care. The ->>>

    “Rare Diseases & Orphan Drugs” – issue 15

    Wednesday 1 May 2013 | 623 views
    nl_15_bg

    The new issue of “Rare Diseases & Oprhan Drugs” is already published on our website. A new beginning for rare diseases in Bulgaria – this ->>>

    Becker muscular dystrophy

    Monday 22 April 2013 | 976 views

    SYNONIMS: Becker dystrophinopathy ICD10 code: G71.0 ORPHANET number: ORPHA98895 For more information about this disease, please visit the Orphanet website. Visitors from North America may also contact NIH Office of ->>>

    Alpha 1 antitrypsin deficiency

    Friday 19 April 2013 | 1,948 views

    SYNONIMS: – ICD10 code: Е88.0 ORPHANET number: ORPHA60 For more information about this disease, please visit the Orphanet website. Visitors from North America may also contact NIH Office of ->>>


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