Rare diseases registries in search of answers
May you briefly introduce yourself to our readers? My name is Manuel Posada. I am the Director of the Institute of Rare Diseases Research (IIER) ->>>
Because everyone is unique on his/her own… just as rare diseases are
Introducing and explaining rare diseases is a simple and complicated taks at the same time. It is easy in terms of statistics – a rare ->>>
In a Time of Economic Difficulty Some Form of Health Technology Appraisal Is Inevitable
May you briefly introduce yourself to our readers? Edmund Jessop (EJ): My name is Edmund Jessop. I am medical adviser to the Advisory Group for ->>>
After the National Conference and Before the Cross-Border Healthcare Directive
Would you present yourself to the readers of “Rare Diseases & Orphan drugs”? Elena Eneva (EE): My name is Elena Eneva and I am a ->>>
Rare diseases – how to create something really valuable for the society together
May you briefly introduce yourself to our readers? Hanns Lochmüller (HL): I am trained as a neurologist and see patients with muscle disorders in my ->>>
