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    Page 1 of 212

    Cystic Fibrosis – Let’s Add Life

    Thursday 20 June 2013 | 1,787 views
    cf

    Since three years we have been holding discussions with representatives of the Ministry of Health that the adoption of a cystic fibrosis treatment standard based ->>>

    Rare diseases registries in search of answers

    Friday 1 March 2013 | 1,361 views
    Dr. Manuel Posada

    May you briefly introduce yourself to our readers? My name is Manuel Posada. I am the Director of the Institute of Rare Diseases Research (IIER) ->>>

    Because everyone is unique on his/her own… just as rare diseases are

    Friday 15 February 2013 | 1,452 views

    Introducing and explaining rare diseases is a simple and complicated taks at the same time. It is easy in terms of statistics – a rare ->>>

    In a Time of Economic Difficulty Some Form of Health Technology Appraisal Is Inevitable

    Friday 4 January 2013 | 1,571 views
    Edmund Jessop

    May you briefly introduce yourself to our readers? Edmund Jessop (EJ): My name is Edmund Jessop. I am medical adviser to the Advisory Group for ->>>

    After the National Conference and Before the Cross-Border Healthcare Directive

    Thursday 25 October 2012 | 1,561 views
    E_Eneva

    Would you present yourself to the readers of “Rare Diseases & Orphan drugs”? Elena Eneva (EE): My name is Elena Eneva and I am a ->>>


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