National Gaucher Disease Association – among the First Recipients of Patient Advocacy Leadership Awards
The Bulgarian National Gaucher Disease Association has been recently announced among the first recipients of the Genzyme Patient Advocacy Leadership (PAL) Awards. This global grant programme supports non-profit organizations that work on behalf of patients living with lysosomal storage disorders, a group of rare, inherited disorders that cause progressive and debilitating health problems. The Genzyme PAL Award program was launched to encourage new and innovative approaches to improve disease awareness, patient care support and education. More than 50 patient organizations representing 25 countries submitted proposals. Eleven recipients were chosen and received nearly $100,000 from Genzyme. Besides the Bulgarian National Gaucher Association, this year’s recipients included patient associations and groups from the Netherlands, Colombia, Italy, Brazil, USA, Canada, Singapore and India.