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Draft regulation for registration of rare diseases

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_DSC9494The Ministry of Health officially published on 9 July 2014 a draft regulation on the terms and conditions for registration of rare diseases and centers of expertise and reference networks for rare diseases. This legal document is the result of many years of efforts of doctors, patients and specialists from the Institute of Rare Diseases. It will be subjected to a public discussion. The regulation is expected to significantly contribute to improving access and quality of care for patients with rare diseases in Bulgaria. For more information, please visit the official website of the Ministry of Health.

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