1.3K
Contact Person:
Mrs. Desislava HRISTAKEVA – President
Postal Address:
47 Vladislav Ochkov Street
8800 Sliven
Bulgaria
Mobile Phone:
(+359) 898 688 767
E-mail:
dessy_pavel@mail.bg
Description:
The association was created in June 2007. Its members are patients from all ages, their relatives. It is a member of the National Alliance of People with Rare Diseases. The association is lobbying for the adequate medical treatment of the mucopolysaccharidosis patients and the respect of their rights.
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Last modification: 13:58 12.06.2018
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