Publications and analyses
PUBLICATIONS IN PEER-REVIEWED JOURNALS
• Iskrov G, Stefanov R. Post-marketing access to orphan drugs: a critical analysis of health technology assessment and reimbursement decision-making considerations. Orphan Drugs: Research and Reviews 2014, 4:1-9. NEW!
• Taruscio D, Gentile AE, De Santis M, et al. EUROPLAN: A Project to Support the Development of National Plans on Rare Diseases in Europe. Public Health Genomics. 2013;16(6):278-87. NEW!
• Iskrov G, Raycheva R, Stefanov R. Insight into reimbursement decision-making criteria in Bulgaria: implications for orphan drugs. Folia Med (Plovdiv). 2013;55(3&4):80-86. NEW!
• Linertová R, Serrano-Aguilar P, Posada-de-la-Paz M, et al.; BURQOL-RD Research Group. Delphi approach to select rare diseases for a European representative survey. The BURQOL-RD study Health Policy. 2012 Nov;108(1):19-26.
• Iskrov G, Miteva-Katrandzhieva T, Stefanov R. Challenges to orphan drugs access in Eastern Europe: the case of Bulgaria. Health Policy. 2012 Nov;108(1):10-8.
• Miteva Ts, Jordanova R, Iskrov G, Stefanov R. General knowledge and awareness on rare diseases among general practitioners in Bulgaria. Georgian Med News. 2011 Apr;(193):16-9.
• Taruscio D, Vittozzi L, Stefanov R. National plans and strategies on rare diseases in Europe. Adv Exp Med Biol. 2010;686:475-91.
• Taruscio D, Trama A, Stefanov R. Tackling rare diseases at European level: why do we need a harmonized framework? Folia Med (Plovdiv). 2007;49(1-2):59-67.
• Bresin E, Daina E, Noris M, et al; International Registry of Recurrent and Familial HUS/TTP. Outcome of renal transplantation in patients with non-Shiga toxin-associated hemolytic uremic syndrome: prognostic significance of genetic background. Clin J Am Soc Nephrol. 2006 Jan;1(1):88-99.
• Gamba S, Cicci L, Stefanov R. Quality of life in patients with unusual diseases: experience of nurses at the clinical research center for unusual diseases Aldo e Cele Daccò. Assist Inferm Ric. 2003 Jul-Sep;22(3):144-50.
Rare diseases within the Bulgarian public health system
• Review of the actual situation and tendences in the rare diseases field in Bulgaria
Issue 1 / November 2010 (click here to read the PDF file, 0.98 MB)
Access to orphan drugs
• Review of the access to orphan drugs in Bulgaria
Issue 4 / July 2013 (click here to read the PDF file, 170 KB)
Issue 3 / September 2012 (click here to read the PDF file, 280 KB)
Issue 2 / March 2011 (click here to read the PDF file, 705 KB)
Issue 1 / June 2010 (click here to read the PDF file, 150 KB)