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    Initiatives

    Print | Wednesday 21 December 2011 | 4,117 views

    You can find in this section information on the public initiatives and campaings, dedicated to the rare diseases issues. You can further read about the activities, managed by the patient associations in Bulgaria – the Rare Disease Day, raising rare diseases awareness campaings, charity events, rare diseases training seminars for GPs and medical students.

     

     

    2011
    · September 12-18 – Rare Diseases Summer School for Health Policy Makers and Decision Takers
    · April 27-28 – Seminar “Rare Diseases Patients and Medical Students – ideas for partnerships and common projects”
    · February 28 – Rare Diseases Training Seminar for GPs (on the occasion of Rare Disease Day)

    2010
    · October 26 – Round Table Discussion on Patient Role in Health Policy Making
    · October 15 – “On Yesterday, Today and Tomorrow”. The personal stories of 9 Bulgarian rare diseases patients
    · October 1 – Rare Diseases Epidemiology
    · September 17 – March of People with Rare Diseases
    · March 27-28 – Seminar “Rare Diseases Patients and Medical Students – ideas for partnerships and common projects”
    · February 28 – Rare Diseases Day in Bulgaria

    2009
    · September 15 – Protest March of People with Rare Diseases
    · July 10 – Workshop “How to Learn to Live with the Disease”
    · June 1 – Charity Bazaar in Favour of People with Rare Diseases
    · February 28 – Rare Diseases Day in Bulgaria

    2008
    · December 23 – Christmas Charity Initiative in Favour of People with Rare Diseases

    2007
    · December 22 – Charity Christmas Concert

    2005
    · August 16 – Pilot Study on Epilepsy

     


    
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