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    Print | Tuesday 11 February 2014 | 10,395 views

    EVENTS

    Training workshop “Advanced aspects of HTA”, 22-23 February 2014
    • Programme (click here to download the programme)
    • Speakers (click here to download the speaker list)
    • Slides (click here to download the zip file)
    • Gallery (click here explore the gallery)

    Training workshop “Introduction in HTA”, 5 October 2013
    • Programme (click here to download the programme)
    • Speakers (click here to download the speaker list)
    • Slides (click here to download the zip file)
    • Gallery (click here to explore the galley)

    Roundtable discussion “HTA in rare diseases”, 1 November 2012 (hosted by the Health Committee of the Bulgarian National Parliament)
    • Prof. Rumen Stefanov’s slides (click here to download the presentation)
    • Official stenograph (click here to download the stenograph)

    INVITED PRESENTATIONS

    Rare diseases centres of expertise and HTA in Bulgaria after the EU Directive on crossborder healthcare (4th National conference for rare diseases and orphan drugs, Plovdiv, 2013)
    Economics and management of rare diseases (National conference for rare diseases, Moscow, 2013)
    Access to orphan drugs in Eastern Europe: the case of Bulgaria (3rd International Rare Diseases Summer School for health authorities and ligislators, Antalya, 2013)
    Economic burden of rare diseases in Europe (3rd International Rare Diseases Summer School for health authorities and ligislators, Antalya, 2013)

    PROJECTS

    Socio-economic burden and health-related quality of life in patients with rare diseases in Europe (European project BURQOL-RD, co-funded by the EU) (2010 – 2013)
    • Official website of BURQOL-RD project (click here)
    • Preliminary results from the BURQOL-RD survey in Bulgaria (click here to download the brochure)
    • Final results (to be published in the European Journal of Health Economics)

    Models of sustainable access to innovative therapies for rare diseases (2013 – 2016)


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