For Patients
Use this form if you are a patient (family member) and want to receive free information about a rare disease.
For Doctors
Use this form if you are a medical professional and want to receive free information about a rare disease.
For Patient Associations
Use this form if you are a representative of a patient association and want to register with our Centre.
Contact us
Use this form for general comments and questions only. If you are a patient, doctor or member of a patient association and want to receive more information about a rare disease, please complete the appropriate form above.
