On 10 July (Friday) a meeting with Mrs. Madlen Algafari will be held in Plovdiv. The event is organized by the Association of HAE Patients, the Information centre for rare diseases and orphan drugs and the National alliance of people with rare diseases. It will start at 16h at “Sezoni” Hall (18 Krastyu Pastuhov Street, o).

The official website of the Fourth Eastern European Conference for Rare Diseases and Orphan Drugs is now available in 5 languages – Bulgarian, English, French, German and Russian. Visit www.conf2009.raredis.org regularly and stay tuned to all news and updates concerning this important scientific event.

The Scientific committee of the Fourth Eastern European Conference for Rare Diseases and Orphan Drugs is now formed. To see its members, please click here.

On May 21 (Thursday) from 18.30h. at the Hotel Expo - Sofia (149 Tsarigradsko Shosse Blvd) a charity auction of paintings in aid of children with rare diseases will be held. Pygmalion Foundation and Hebrosart Gallery are the organizers.

The Fourth Eastern European Conference on Rare Diseases and Orphan Drugs will be held on June 13-14 2009 in Plovdiv, Bulgaria. The conference will take place in the Congress centre of NOVOTEL – Plovdiv. More detailed information will be given soon.