Institute for rare diseases » Rare diseases and orphan drugs

Like All of Us

26/02/2020Thursday February 27th, 2020

by informer 26/02/2020Thursday February 27th, 2020

European survey about Patients´ unmet need in medical research

17/01/2020

by informer 17/01/2020

Self-help for improving the quality of life of people with rare diseases and their families

08/01/2020

by informer 08/01/2020

New methods for health technology assessement

07/01/2020Tuesday January 7th, 2020

by informer 07/01/2020Tuesday January 7th, 2020

Rare Diseases and Orphan Drugs

06/01/2020Monday January 6th, 2020

by informer 06/01/2020Monday January 6th, 2020

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Latest news

Like All of Us

26/02/2020Thursday February 27th, 2020

by informer 26/02/2020Thursday February 27th, 2020

Spinal muscular atrophy with respiratory distress type 1

25/02/2020

by informer 25/02/2020

Hip Dislocation in Patients with Kabuki Syndrome

21/02/2020

by informer 21/02/2020

Clinical decision-making tools addressing rare diseases

19/02/2020Wednesday February 19th, 2020

by informer 19/02/2020Wednesday February 19th, 2020

Cushing disease in children and adolescents

18/02/2020

by informer 18/02/2020

Whipple’s disease: diagnosis and predictive factors of relapse

12/02/2020

by informer 12/02/2020

A Case of Wilkie’s Syndrome

11/02/2020

by informer 11/02/2020

Personalised analytics for rare disease diagnostics

07/02/2020

by informer 07/02/2020

Variation in cognitive function over time in Gaucher disease type 3

05/02/2020

by informer 05/02/2020

Member States meet with the European Commission in Brussels on January 29th to discuss the protection of personal data in the health sector

31/01/2020

by informer 31/01/2020

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Rare diseases and orphan drugs - news and analyses

Featured posts

Like All of Us

European survey about Patients´ unmet need in medical research

Self-help for improving the quality of life of people with rare diseases and their families

New methods for health technology assessement

Rare Diseases and Orphan Drugs

Latest news

Like All of Us

Spinal muscular atrophy with respiratory distress type 1

Hip Dislocation in Patients with Kabuki Syndrome

Clinical decision-making tools addressing rare diseases

Cushing disease in children and adolescents

Whipple’s disease: diagnosis and predictive factors of relapse

A Case of Wilkie’s Syndrome

Personalised analytics for rare disease diagnostics

Variation in cognitive function over time in Gaucher disease type 3

Member States meet with the European Commission in Brussels on January 29th to discuss the protection of personal data in the health sector