Institute for rare diseases
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Institute for rare diseases

Rare diseases and orphan drugs - news and analyses

  • HOME
  • ABOUT US
    • Information center
    • Medical center
    • Center for HTA and analyses
    • Who we are
  • Projects
    • EU Funded Projects
      • European Project EUROPLAN
      • European Project EPIRARE
      • European Project S.T.o.Re
      • European Project BURQOL-RD
      • European Project RD PORTAL
      • Autism Spectrum Disorders in Europe project
  • RARE DISEASES
    • Latest news
    • Orphan Drugs
    • Rare diseases
      • A – F
      • G – M
      • N – Z
    • EPIDEMIOLOGICAL REGISTRIES
    • Patient Organizations
    • Centers of expertise in Bulgaria
    • Educational Materials
    • F.A.Q.
  • Publications
    • Scientific Publications
    • Analyses
  • Events
    • Upcoming events
    • Past events
  • Contact us

Featured posts

Collection of presentations and posters

14/03/2018

Presentations from Training workshop on health technology assessment

06/03/2018

Osteogenesis imperfecta

07/02/2018

Pulmonary arterial hypertension

07/02/2018

Spinal muscular atrophy

06/02/2018
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Latest news

Training seminar for rare disease patients

20/04/2018

Behçet’s disease

16/04/2018

25 Years of ESPED as a Surveillance Tool for Rare Diseases in Children in Germany

05/04/2018

Pseudohypoparathyroidism

16/03/2018

Collection of presentations and posters

14/03/2018

ASDEU quarterly newsletter

25/01/2018

Bridging the gap between health and social care for rare diseases

15/12/2017

Immunological Rare Diseases

15/12/2017

Epilepsy in mucopolysaccharidosis disorders

08/12/2017

Osteogenesis imperfecta

08/12/2017
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Upcoming events

  • IX National Conference for Rare Diseases and Orphan Drugs | 31/08/2018

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