The Rare Diseases Summer School 2011 will be taking place from 11 to 18 September 2011 in the Bulgarian Black Sea resort of Sunny Beach. The project is the first of its kind in Eastern Europe and aims to improve awareness and professional qualification of health policy and decision makers on rare diseases topics. The event is jointly organized by BAPES, the National Association of organizations of patients with rare diseases “Genetics” (Russia) and the National Center for Rare Diseases (Italy). Rare Diseases Summer School 2011 is a unique international project because it combines the knowledge and practices on rare diseases of three countries with different health systems, with different experiences, but with problems that are more or less common. The invited lecturers are leading rare diseases experts from Bulgaria and EU, while participants include representatives from Russia’s federal and regional legislative institutions and health authorities. A detailed report will follow in the next edition of BAPES newsletter.
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