For the tenth consecutive year, the Institute for Rare Diseases and Orphan Drugs organises a national conference. This year the conference will be held under the patronage of the Health Commission at the 44th National Assembly of the Republic of Bulgaria.
“Within its remit, the Health Commission has always been an open partner to support the efforts of institutions and non-governmental organizations to improve the development of prevention, diagnosis, treatment, rehabilitation and social care for people with rare diseases,” the letter said Dr. Daniela Daritkova.
The main topic of the event will be the novelties and current trends in the diagnosis, treatment and follow-up of rare diseases, the development of European reference networks and access to innovation in the field of rare diseases.
The 15th anniversary of the Information Center for Rare Diseases and Orphan Drugs (ICRDOD) will also be celebrated during the event. The Information Center started its activity in 2004 as the first information center of its kind in Eastern Europe dedicated to patients, organizations and medical specialists with an interest in rare diseases and orphan drugs. ICRDOD has been developing over the past 15 years with the support and assistance of 26 volunteer consultants – leading medical specialists from the university clinics in Bulgaria. For more information click here.