This year on 6-8 of December 2019 in Athens, Greece the Duchenne Data Foundation, with the support of the World Duchenne Organization, is launching the 3rd edition of the Duchenne Patient Academy. Over the past years, the Duchenne world has been changing due to a fast evolving research and regulatory landscape. For this, the need for adaptive and proactive Duchenne advocates has increased. In this intensive two-day training session, both Next Generation Young Advocates and Experienced Advocates will receive a parallel training and updates to set a strong base for current and future global advocacy.This Duchenne Masterclass will focus on setting the foundation of advocacy and gaining a deeper understanding of the Duchenne field in terms of regulatory, HTA, clinical trial, care, research and industry developments. For more information click here.
NCATS Toolkit for Patient-Focused Therapy Development