On 10-11 September 2021, for 12th consecutive year, the Institute for Rare Diseases has organised the the National Conference for Rare Diseases and Orphan Drugs. The conference is an annual forum that brings together all stakeholders – health care professionals, patients, medical students, health authorities and industry. This year, 46 speakers took part in the Scientific Program and presented current topics related to innovations in the diagnosis, treatment and follow-up care for patients with rare diseases, the development of European reference networks and all latest news related to access to innovation. The Poster session included 29 scientific posters on various topics related to rare diseases. More than 80 interactive materials and videos accessible 24/7 are presented at the Virtual Booths of the Institute for Rare Diseases, the National Alliance of People with Rare Diseases and our industry partners.
The registered conference participants will have the opportunity, within the month of September, to view all recordings of the lectures, Scientific Posters and to visit the digital materials available at the Virtual Booths in the Virtual Congress Venue.