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Living with spinal muscular atrophy (SMA)

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The focus of the new video series “Living with Rare Diseases” is Spinal Muscular Atrophy (SMA) – an inherited neuromuscular disease, affecting 1 in 11 000 newborns. There are about 160 patients diagnosed with this rare disease in Bulgaria. Thanks to the development of medicine, people with SMA in Bulgaria have access to an innovative treatment since 2019 which provides an opportunity for a better future, if started early on time. See how the lives of Alexander and Nikolinka Matsoeva, the Kunovi family and Malena Vasileva have changed 3 years after access to treatment and how the difficulties have made them stronger and more valuable people!

 

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