Developing a targeted framework for patients with haemophilia

Growing budgetary demands have led to increased study of healthcare spendings for rare diseases, which has led to the idea to define objectively patient-centred value in haemophilia care. An international panel of experts identified the range of patient impacts of haemophilia health care and organize these into a three-tiered, patient-centred outcomes framework based on Porter’s model for assessing value. More information about the framework could be found here.