The aim of the study is to analyze data on oral health-related quality of life (OHRQoL) in people with Marfan syndrome and to obtain information on the diagnosis period, orthodontic treatment, and oral symptoms.
A questionnaire is developed consisting of open questions and the standardized German version of the OHIP-14 (Oral Health Impact Profile) questionnaire for the evaluation of OHRQoL. A total of 51 questionnaires are evaluated, which includes 34 female and 17 male participants.
The conclusion from the study is that people with Marfan syndrome have a worse OHRQoL than do the general population.
More information about the study you can find here.