Projects on Bulgarian level
· 2009, August 1 – Pilot Epidemiological Study of Chronic Myeloid Leukemia (more information)
· 2009, May 15 – Opening of Medical Centre “RareDis” (more information)
· 2008, August 1 – National registry of patients with thalassemia major in Bulgaria (more information)
Projects on EU level
· 2010, April 20 – BURQOL – RD Project (more information)
· 2010, April 1 – RD PORTAL 2 Project (more information)
· 2009, June 13-14 – Fourth Eastern European Conference for Rare Diseases (more information)
· 2007, December 11 – EUROPLAN Project (more information)
· 2007, April 1 – RD PORTAL 1 (ORPHANET) (more information)
Social, Educational and Scientific Initiatives
2010
· October 1 – Rare Diseases Epidemiology (more information)
· September 17 – March of People with Rare Diseases (more information)
· July 2-4 – Fifth Eastern European Conference for Rare Diseases (more information)
· May 28-30 – EUROPLAN National Conference for Rare Diseases and Orphan Drugs (more information)
· April 24 – Workshop on Establishing Registry of Crohn Disease Patients in Bulgaria (more information)
· April 9 – Presentation of the Pilot Epidemiological Study of Chronic Myeloid Leukemia Results (more information)
· March 27-28 – Seminar “Rare Diseases Patients and Medical Students – ideas for partnerships and common projects” (more information)
· March 26 – Meeting on the National Thalassaemia Registry Project (more information)
· February 28 – Rare Diseases Day in Bulgaria (more information)
2009
· September 15 – Protest March of People with Rare Diseases (more information)
· July 10 – Workshop “How to Learn to Live with the Disease” (more information)
· June 1 – Charity Bazaar in Favour of People with Rare Diseases (more information)
· February 28 – Rare Diseases Day in Bulgaria (more information)
· January 31 – Workshop with the Doctors-Consultants at the ICRDOD (more information)
· January 30 – Meeting on the National Thalassaemia Registry Project (more information)
2008
· December 23 – Christmas Charity Initiative in Favour of People with Rare Diseases (more information)
· November 21-22 – First National Conference for Rare Diseases “ONCOLOGY AND HEMATOLOGY” (more information)
· June 20-21 – Hereditary Angioedema Workshop (more information)
· April 19 – Workshop with the Association of Medicine Students in Bulgaria (more information)
· March 1-2 – Third Eastern European Conference on Rare Diseases (more information)
2007
· December 22 – Charity Christmas Concert (more information)
· November 30 – Workshop on Cystic Fibrosis (more information)
· October 6 – Workshop with the Doctors-Consultants at the ICRDOD (more information)
2006
· September 8-9 – Second Eastern European Conference on Rare Diseases (more information)
· February 6 – Meeting in Medical Genetics (more information)
2005
· December 19 – Annual Meeting of ICRDOD (more information)
· May 27 – First Eastern European Conference on Rare Diseases (more information)
· March 11-12 – Workshop on Hereditary Angioedema (more information)
Annual Reports
· 2010 (open as a pdf file)
· 2009 (open as a pdf file)
· 2008 (open as a pdf file)
· 2007 (open as a pdf file)
· 2006 (open as a pdf file)
· 2005 (open as a pdf file)
Newsletters
· Issue 1, Year I (open as a pdf file)
· Issue 2, Year II (open as a pdf file)
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Last modification: 10:17 15.02.2011
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