Mrs. Desislava HRISTAKEVA – President
47 Vladislav Ochkov Street
(+359) 898 688 767
The association was created in June 2007. Its members are patients from all ages, their relatives. It is a member of the National Alliance of People with Rare Diseases. The association is lobbying for the adequate medical treatment of the mucopolysaccharidosis patients and the respect of their rights.
Last modification: 13:58 12.06.2018