A pilot epidemiological study collected data for all registered adult patients (over age of 18) diagnosed with CML in Bulgaria. Data were obtained from all 5 hematology centers in Bulgaria – Sofia (2 centers), Plovdiv, Varna, Pleven. Period of retrospective data collection – 18 months (01/01/2008 – 30/06/2009). For the period of the study, information was gathered about 227 patients, 22 of them died. At the end of the survey (30/06/2009) there are 205 patients with CML, who are treated in the National specialized hospital for hematology and all University Hospitals in Bulgaria.
Newly diagnosed patients for 2008 are 54.
The annual crude incidence and prevalence are respectively:
I = 0.88 / 100 000 / year
P = 2.96 / 100 000
Median survival of patients with CML is:
95.8 ±9.5 months
Approximately 80% of patients survived about 40 months.
This pilot study has been organized and conducted in close collaboration among National specialized hospital for hematology, University hematology clinics in Bulgaria, Information Center for Rare Disease and Orphan Drugs (ICRDOD), Bulgarian Scientific Society of Clinical and Transfusion Hematology and Medical Center “RareDis”.
The full text of the study will be available soon.
Last modification: 11:29 13.11.2009