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Association Aniridia Bulgaria

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Contact person:

Elena Tsoneva

Address:

Lyulin Center Residential Complex

31 Arh. Georgi Nenov Street

1324 Sofia,

BULGARIA

Phone:

(+359) 878 554 225

E-mail:

office@aniridiabg.eu

Website:

www.aniridiabg.eu

Governing Body:

Mrs. Elena TSONEVA – President

Mrs. Iva PETROVA

Mrs. Gergana KOSTADINOVA

Mrs. Tanya BALABANOVA

Mrs. Bilyana RUSEVA

Mrs. Yordanka NIKOLOVA

Mr. Ognyan PETKOV

Aims of the Association:
• Protect the rights of people with aniridia
• To support the reunification, promotion and information of people with anaridia and their adaptation to society
• To support the professional development and qualification of researchers and medics in the field of diagnosis, treatment and rehabilitation of anaridia
• To familiarize the public with the specifics of the disease, diagnosis, treatment and rehabilitation of anaridia, as well as its physiological and psychological consequences
• Encourage and support the development of research in Bulgaria and abroad
• To establish contacts with similar organizations in the country and abroad
• To establish contacts and permanent dialogue between the Association and the governing bodies and institutions in the Republic of Bulgaria related to this disease / Ministry of Health, Ministry of Labor and Social Policy, National Health Insurance Fund, Drug Agency, National Labor Expert Medical Commission and others./
• Take measures to overcome the emotional consequences of the disease, as well as professional re-training and social rehabilitation of people with anariria
• To provide means for treatment and support of patients with anaridia in Bulgaria and abroad

 

 

 

 

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Last modification: 13:29 12.06.2018
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