Who we are?
The RareDis Solutions Ltd is a legal entity registered in March 2019 and operates as an independent unit within the Institute of Rare Diseases, Bulgaria. We are at the frontier of rare disease area for over 15 years working in close collaboration with patients, medical professionals, caregivers and industry.
Patient with rare diseases are facing a long and difficult journey from diagnose to treatment, which involves multiple healthcare providers, costly procedures and treatment schemes.
RareDis Solutions ‘s team is a trusted partner of the patients with rare diseases, their physicians and caregivers. We work close with all stakeholders within the rare disease community and understand their specific unmet needs, perceptions and beliefs.
Successful companies with treatment options in the rare disease area seek to differentiate how they deliver their offerings in a way that is unique to customer’s needs, personalised and through a service that will improve compliance in an ethical way.
RareDis Solutions utilises professional expertise to map all critical milestones through the rare disease customer’s experience journey in order to propose sustainable healthcare options and achieve improved patient outcome.
RareDis Solutions have established an efficient network between key stakeholders, so a specifically designed customer centric approach adapted to each step of the rare disease patient journey can be executed.
We take compliance extremely seriously and we are confident that can deliver improved patient outcomes better together!
What is Patient flow?
The term “patient flow” refers to the ability of healthcare systems to manage patients effectively and with minimal delays as they move through stages of care. Achieving good flow requires expertise and focus. Getting it right brings satisfaction, reduces stress and improves patient outcomes.
What is RareDis Solutions offering?
We offer creative solutions to complement rare disease therapies with focus on:
- Managed Rare Disease Access & Evidence:
By collecting and analysing real world evidence, we can understand better the rare disease market within а specific therapeutic area, assess the opportunity using a solid base and facilitate faster access.
RareDis Solution: Horizon Scanning & Access Strategy
- Orphan drug strategy:
By collecting and analysing real life insights, we can:
- Identify early suitable patients,
- Asses real-life drug uptake and Rx behaviour,
- Adapt strategy, customize tactics and optimize investments
Obtaining real life data require innovative solutions to challenges such as patient profiling, prevention, diagnostics, treatment heterogeneity, therapy, rehabilitation and we apply several novel statistical solutions in order to deliver valuable input.
RareDis Solution: Patient and Caregiver’s Journey Map
- Orphan Drug holistic approach:we can frame and execute market access, medical, marketing and commercial plans in order to ensure successful launch of therapeutic options for rare diseases.
RareDis Solution: Representation/Local Agent contract
- Patient Services for Rare Diseases
We can facilitate and accelerate patient access to innovative treatments by supporting navigation within the local Health Insurance System and demonstrate value. We track, measure and improve adherence for the identified patients with rare disease in an ethical, legal and compliant way.
RareDis Solution: Solutions for Improved Patient Outcome (SIPO)
- Tailored trainings for Rare Diseases
We can increase the productivity and competitiveness of Your Team in order to achieve peak performance faster and smoother through tailored trainings. Modules can include:
- Foundational training: disease, guidelines, treatments, competitors
- Unique real-life patient pathway training
- Instructor lead brand journey training incl.: role plays, Q&A
RareDis Solution: Tailored Rare Disease Training
- Clinical Trials in Rare Diseases
Due to our own established infrastructure, extensive network with healthcare specialists across the country and regulatory authorities we can facilitate and coordinate trials in rare diseases in order to achieve recruitment targets faster, while strictly following local regulations.
RareDis Solution: Expert Clinical Trial Site for Rare Diseases
Contact RareDis Solutions by e-mail to: email@example.com
Last updated: April 8, 2019 at 10:34 am