Project Duration: 01 April 2007г. – 01 April 2010г.
Budget: € 960 000,00 (contribution from EC)
Website: RD-PORTAL 1
- to improve the services already provided by Orphanet to the public at large
- to provide a comprehensive set of information on rare diseases (RDs) will be accessible from a portal in six languages and will be fully accessible to visually and physically impaired users by developing all the Orphanet screens according to international norms in order to be classified AAA for the disabled
- to include a comprehensive encyclopaedia of rare diseases, written by experts and peer-reviewed, a directory of professional services throughout 35 countries, including a directory of centres of reference in Europe, and a database of orphan drugs providing information on their stage of development and availability in the Member States.
Coordinator: Institut National de la Santé et de la Recherche Médicale (INSERM)