In April 2007 Information Centre for Rare Diseases and Orphan Drugs became part of the European project Orphanet as an official partner for Bulgaria. Orphanet is a database of information on rare diseases and orphan drugs for all publics. Its aim is to contribute to the improvement of the diagnosis, care and treatment of patients with rare diseases. Orphanet includes a Professional Encyclopaedia, which is expert-authored and peer-reviewed, a Patient Encyclopaedia and a Directory of expert Services. This Directory includes information on relevant clinics, clinical laboratories, research activities and patient organisations.
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Last modification: 10:50 05.02.2009