PREVALENCE OF RARE DISEASES:
• National registry of patients with thalassemia major in Bulgaria
_____Information at the beginning of the project (August 2008)
_____Certification of BAPES as personal data administrator by the State Agency for Data Privacy Protection (October 2009)
_____Preliminary results (January 2010)
_____Phase I official results (April 2010)
_____Phase II official results (October 2010)
• National registry of patients with chronic myeloid leukemia (CML) in Bulgaria
_____Phase I official results (November 2010)
• Pilot epidemiological study of chronic myeloid leukemia (CML) (click here for more information)
RARE DISEASES WITHIN THE BULGARIAN PUBLIC HELATH SYSTEM:
• Review of the actual situation and tendences in the rare diseases field in Bulgaria
_____issue 1 / November 2010 (click here to read the PDF file, 0.98 MB)
ORPHAN DRUGS:
• Review of the access to orphan drugs in Bulgaria
_____issue 1 / June 2010 (click here to read the PDF file, 150 KB)
_____issue 2 / March 2011 (click here to read the PDF file, 705 KB)
For the relevant information on EU level, please visit Orphanet