Euro Histio Net (reference network for Langerhans cell histiocytosis and associated syndrome) is one of the pilot European Reference Networks for rare diseases, which have been awarded financing for a three-year duration by the European Commission. Project leader is the Assistance Publique Hôpitaux de Paris, France, represented by Dr Jean Donadieu from the French Reference Centre for Histiocytosis in the Trousseau Hospital in Paris. Project partners include physicians and representatives of patient associations from EU, USA, Canada, Russia, Brazil and Middle East. The knowledge and experience of different European LCH centres are shared and disseminated by means of a publicly available webportal: www.histio.net. The webportal contains lists of frequently asked questions and expert validated answers, maps of experts and targeted patient websites.
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