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Rare Diseases Best Practices

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rarebp

 

 

Project Duration: 01 January 2013 – 31 December 2016
Overal Project Budget: € 2 293 654,86
EU Contribution: € 2 000 000
Website: RARE-Best practices
General Objectives: 

  • collection, evaluation and dissemination of existing best practices;
  • an agreed methodology suitable to develop and update best practice guidelines;
  • training activities targeted at key stakeholders to spread expertise and knowledge;
  • a forum for exchanging information, sharing lessons learnt, and facilitating collaborations.

Project Coordinator: ISTITUTO SUPERIORE DI SANITA

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