International Workshop “Rare disease and orphan drug registries”

International Workshop “Rare disease and orphan drug registries” will take place on 24 – 25 November 2014 in Rome, Italy. The event is being organized by the National Centre for Rare Diseases and the Italian National Institute of Health in the framework of the EPIRARE Project. The workshop is open to scientists, clinicians, patient and parent associations, policy makers and enterprises. It will consist of oral presentations, posters and focus group sessions.The main aim of the event is to exchange experiences and presentation of scientific results to foster international collaboration in the field of rare disease registries. For more information, please visit: the official EPIRARE website.