The low incidence of rare diseases and the lack of experience leads patients to difficulties in finding experts who are specialized and experienced in the treatment of their illnesses and the acquisition of qualified responses. In order to overcome these difficulties, an Internet Expert Advisory Board EXABO was developed within the European Reference Network for Rare Respiratory Diseases (ERN-LUNG). The original purpose of creating this platform is dedicated to rare respiratory illness, but the device is planned as a common tool for additional illnesses or groups of diseases. More information about the platform can be found here.
Research of Faber’s disease in Spain