The Rare Disease Day is commemorated for 7th consecutive year in Sliven under the leadership of the president of the National Mucopolysaccharidosis Association – Desislava Hristakeva. The event is supported by the institutions in the face of the mayor of Sliven Mr. S. Radev and Deputy Mayor from the health care sector Pepa Tschilikova. With the kind participation of volunteers from the Red Cross, representatives of Association of thalassemia patients, students from Medical University of Varna – Sliven Affiliate, as well as the Principal of the Affiliate – assoc. prof. I. Dimitrov, md and the Deputy Principal assoc. prof. I. Aleksandrov, md, the children from the Day Care Center for Children with Disabilities ‘Sveti Stiliyan Detepazitel’. At 12:00 it is organized an informational campaign and at 13:00 patients, their families and friends will raise hands and will release balloons as a sign of solidarity with the problems of the people affected by rare diseases.
Honoring Rare Disease Day in Shumen