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BULGARIAN HEMOPHILIA ASSOCIATION

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Contact person:
Mr. Victor PASKALEV

Mr. Yordan NEDEVSKI

Address:

Hipodrum Residential Complex, Bl. 120, Ent. A, Apart. 6

Sofia, 1612, BULGARIA

Mobile phone:
(+359) 2 47 83 964

Fax:

02 / 48 97 301

E-mail:
office@hemo-bg.org

Internet site:
http://hemo-bg.org

Youtube URL address:

https://www.youtube.com/channel/UCQcC_R46z7qv0Pd5Pxpx5yg

Regional Representatives:
Sofia – Mrs. Petya SAZDOVA, e-mail:sazdova.p@hemo-bg.org, Phone number:  +359 889 402 432;

Plovdiv – Mrs. Mariya SOTIROVA,  e-mail: sotirova.m@hemo-bg.org, Phone number: +359 899 894 479;

Varna – Mrs. Mirena MANZOVA-IVANOVA, e-mail: manzova.m@hemo-bg.org, Phone number: +359 888 116 685;

Pleven – Mr. Boyko GARGOV, e-mail: boyko.g@hemo-bg.org, Phone number: +359 883 367 111;

 

Governing Body:

Mr. Victor PASKALEV – Presiden
Mr. Yordan NEDEVSKI – Deputy Chairman 
Mrs. Anna BESHKOVA
Mr. Nikolay TSONEV
Mrs. Emiliya ANDREEVA

Priorities of the association:

  • Establish a national work plan for treatment and prophylaxis and adequate policies for the treatment of haemophilia A, hemophilia B, von Villebrand disease and other rare coagulopathies;
  • Improving the diagnosis, treatment and control of the treatment of patients with haemophilia A, hemophilia B, von Villebrand disease and other rare coagulopathies;
  • Increasing the patient’s capacity (knowledge and skills) about the disease;
  • Raising the capacity (knowledge and skills of the disease) of parents of children suffering from haemophilia A, haemophilia B, von Villebrand disease and other rare coagulopathies;
  • Building a network between physiotherapists and rehabilitators working with patients with haemophilia, von Villebrand disease and other rare coagulopathies to improve the quality of life of these patients;
  • Familiarity with Haemophilia A, Haemophilia B, Von Villebrand disease and other rare coagulopathies and informing about the problems associated with them;
  • Overcome and counteract discrimination and stigmatization of patients with haemophilia A, hemophilia B, von Villebrand disease and other rare coagulopathies;

 

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Last modification: 12:12 15.06.2018
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