The lack of a national registry of acromegaly management in the United States requires the use of medical and ambulatory electronic health records to create a database for the de-identification of patients assigned code for Acromegaly and Gigantism. The use of this method makes it possible to collect and add information on demographics, medical history, laboratory tests, procedures and used medications. The system also aids in the percentage monitoring of treatment, lab data, and determines the importance of active treatment in age groups with fewer data. More information about the benefits of using the electronic health records in USA can be found here.
NATIONAL SYRINGOMYELIA ASSOCIATION