Submission of proposals and request to the Commission on Rare Diseases
The Commission on Rare Diseases at the Ministry of Health adopted an official proposal form for inclusion of diseases into the Bulgaria’s List of Rare Diseases, as well as an official request form for designation of an expert centre for rare diseases.
The Commission on Rare Diseases was established by the Minister of Health in implementation of Ministerial Ordinance № 16 of July 30, 2014 on the terms and conditions for registration of rare diseases and designation of centres of expertise and reference networks for rare diseases. The Commission prepares opinions to the Minister of Health on proposals for inclusion in the List of Rare Diseases, as well a ... ->>>Call for interest for European Reference Networks
A call for highly specialised healthcare providers to establish European Reference Networks (ERNs) has opened on 15 March, and will run until 21 June 2016. DG SANTE is organising an info day on 7 April 2016 to help candidates with the technicalities of the call for interest for ERNs and call for grants. The event will take place in Brussels on 7 April 2016.
For more information visit the website of the European commision.
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(BG) Синдром на Волф-Хиршхорн
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Save the date for the Seventh National Conference for rare diseases and orphan drugs
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Formal meeting and discussion in MC “RareDis”
On April 11, 2016 in the Medical center “RareDis” was held an official meeting with Professor, Dr. Aspazija Sofijanova – director of the university pediatric ->>>
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Medical genetics course
Dear colleagues, For the first time in Bulgaria will be held one of the most prestigious courses in the field of genetics – 29th Course ->>>
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11th INTERNATIONAL CONFERENCE ON RARE DISEASES & ORPHAN DRUGS
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World orphan drug congress 2016, USA
On April 20- 22 in Washington – the US, was held the World orphan drug congress 2016. in which Prof. Dr. Rumen Stefanov, MDq PhD ->>>
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Save the date for the Seventh National Conference for rare diseases and orphan drugs
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4th International Summer School on Rare Disease & Workshop
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New project for psychosocial help for people with rare diseases is starting
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Autism Spectrum Disorders in Europe project is starting
Understanding about autism will get a boost as universities, charities and expert institutions from 14 European countries come together in a major new programme. Autism ->>>
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Narrative medicine in Bulgaria
Rare Diseases and Orphan Drugs Journal has recently published the results from a research on the attitudes of doctors and patients on the application of ->>>
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Economic burden and quality of life of patients with cystic fibrosis in Bulgaria
Folia Medica Journal has published a paper on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF). The study ->>>
