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Rare diseases and orphan drugs - news and analyses
HOME
ABOUT US
Information center
Medical center
Center for HTA and analyses
RareDis Solutions
Who we are
Projects
Like all of us
EU Funded Projects
European Project EUROPLAN
European Project EPIRARE
European Project S.T.o.Re
European Project BURQOL-RD
European Project RD PORTAL
European Project RD-ACTION
Autism Spectrum Disorders in Europe project
RARE DISEASES
Latest news
Orphan Drugs
Rare diseases
A – F
G – M
N – Z
EPIDEMIOLOGICAL REGISTRIES
Patient Organizations
Centers of expertise in Bulgaria
Educational Materials
F.A.Q.
Publications
Scientific Publications
Analyses
Events
Upcoming events
Past events
Contact us
Featured posts
COVID-19 and Pulmonary Hypertension
02/07/2020
by
informer
02/07/2020
Epidemiology of Retinitis pigmentosa and Leber‘s congenital blindness
23/06/2020
by
informer
23/06/2020
Innovation, added benefits and pricing in health technology assessment
22/06/2020
by
informer
22/06/2020
Rare Diseases and Orphan Drugs
22/06/2020
Monday June 22nd, 2020
by
informer
22/06/2020
Monday June 22nd, 2020
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Latest news
COVID-19 and Pulmonary Hypertension
02/07/2020
by
informer
02/07/2020
Access to dental care during a coronavirus pandemic – recommendations for people with haemophilia
25/06/2020
by
informer
25/06/2020
Clinical case of a patient with plexus brachialis neurofibroma – the role of physiotherapy in a multidisciplinary team
24/06/2020
by
informer
24/06/2020
Epidemiology of Retinitis pigmentosa and Leber‘s congenital blindness
23/06/2020
by
informer
23/06/2020
Innovation, added benefits and pricing in health technology assessment
22/06/2020
by
informer
22/06/2020
Rare Diseases and Orphan Drugs
22/06/2020
Monday June 22nd, 2020
by
informer
22/06/2020
Monday June 22nd, 2020
Reuma.pt/vasculitis – The Portuguese Vasculitis Registry
18/06/2020
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informer
18/06/2020
Living With Type I Usher Syndrome
16/06/2020
by
informer
16/06/2020
Celocentesis for Early Prenatal Diagnosis of Hemoglobinopathies
15/06/2020
by
informer
15/06/2020
Detection of alpha-1 Antitrypsin Deficiency
12/06/2020
by
informer
12/06/2020
Lifetime Risk of Autosomal Recessive Mitochondrial Disorders
09/06/2020
by
informer
09/06/2020
Some Aspects of the Management of Patients With X-Linked Hypophosphataemic Rickets
05/06/2020
by
informer
05/06/2020
Syringomyelia and Chiari Syndrome Registry
04/06/2020
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04/06/2020
Clinical and Genetic Aspects of Hereditary Spastic Paraplegia in Patients From Turkey
03/06/2020
by
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03/06/2020
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