Institute for rare diseases
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Institute for rare diseases

Rare diseases and orphan drugs - news and analyses

  • HOME
  • ABOUT US
    • Information center
    • Medical center
    • Center for HTA and analyses
    • RareDis Solutions
    • Who we are
  • Projects
    • EU Funded Projects
      • European Project EUROPLAN
      • European Project EPIRARE
      • European Project S.T.o.Re
      • European Project BURQOL-RD
      • European Project RD PORTAL
      • European Project RD-ACTION
      • Autism Spectrum Disorders in Europe project
  • RARE DISEASES
    • Latest news
    • Orphan Drugs
    • Rare diseases
      • A – F
      • G – M
      • N – Z
    • EPIDEMIOLOGICAL REGISTRIES
    • Patient Organizations
    • Centers of expertise in Bulgaria
    • Educational Materials
    • F.A.Q.
  • Publications
    • Scientific Publications
    • Analyses
  • Events
    • Upcoming events
    • Past events
  • Contact us

Featured posts

Тhe Value of Innovative Pharmaceutical Therapies in Oncology and Hematology

21/05/2019
by informer 21/05/2019

Eidikology: proposition for a new terminology for the science of rare diseases

20/05/2019
by informer 20/05/2019

Hereditary angioedema day

16/05/2019
by informer 16/05/2019

Rosai-Dorfman disease of the central nervous system

16/05/2019
by informer 16/05/2019

International meeting on porphyria problems

14/05/2019
by informer 14/05/2019
View All

Latest news

Health information behaviour of rare disease patients

21/05/2019
by informer 21/05/2019

Тhe Value of Innovative Pharmaceutical Therapies in Oncology and Hematology

21/05/2019
by informer 21/05/2019

Eidikology: proposition for a new terminology for the science of rare diseases

20/05/2019
by informer 20/05/2019

Periodontal condition in growing subjects with Marfan Syndrome

20/05/2019Monday May 20th, 2019
by informer 20/05/2019Monday May 20th, 2019

Clinical Practice Guidelines for Epidermolysis Bullosa Laboratory Diagnosis

17/05/2019
by informer 17/05/2019

Hereditary angioedema day

16/05/2019
by informer 16/05/2019

Rosai-Dorfman disease of the central nervous system

16/05/2019
by informer 16/05/2019

Impact of Diagnosis and Therapy on Cognitive Function in Urea Cycle Disorders

15/05/2019
by informer 15/05/2019

Follow-up of patients with non-diagnostic exome sequencing

14/05/2019
by informer 14/05/2019

Hereditary angioedema

14/05/2019
by informer 14/05/2019
View All
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  • X National Conference for Rare Diseases and Orphan Drugs | 13/09/2019

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