• Home
    • Activities
    • Rare diseases
    • Registries
    • CAHTA
    • MC RareDis
    • Newsletter
    • About us

    Last posts by topic

  • Site updates (254)

      SYNONIMS: Hunter syndrome, Iduronate 2-sulfatase deficiency ICD10 code: E76.1 ORPHANET number: ORPHA580 For more information about this disease, please visit the Orphanet website. Visitors from North America may also contact NIH ->>>

    • conf20134th National Conference for Rare Diseases Book

      4th National Conference for Rare Diseases and Orphan Drugs proceedings book is now published on our website. You can explore all the presentations and posters (in Bulgarian). ->>>

  • News from Bulgaria (132)
  • International news (139)
    • EMA_logoBooklet for the European drug regulations

      The European Medicines Agency (EMA) has published an illustrated booklet that explains how the European regulatory system for medicines operates. It describes the way drugs ->>>

    • EMA_logoBest Practices for genomic biomarkers

      The European Medicines Agency (EMA) has released a draft concept paper  outlining the key elements that will be developed in a guideline on good genomics biomarker practices. With this guidance ->>>

  • Events (106)
  • Projects (47)
    • STORE-LOGO-office-H13S.T.o.Re Project

      S.T.o.Re Project, funded by the EC, officially started in August 2013. It aims to understand to what extent and in what ways narrative-based medicine (NBM) can ->>>

    • burqol-rdEuropean Project BURQOL-RD – final results

      The EU-funded BURQOL-RD Project is now officially finalised. The main aim of BURQOL-RD was to generate a model to quantify the socio-economic costs and Health ->>>

  • Publications (29)
    Copyright © 2014 | ICRDOD - Bulgaria | Term of service | Privacy policy | Advertising policy | RSS Feed